Why the future of elder care may be fewer nursing homes
When geriatrician Bill Thomas first sat down to reimagine American nursing homes, the risk of a deadly pandemic wasn鈥檛 on his mind. His vision was of elder-directed care on a human scale, an alternative to the 鈥渂ig box鈥� homes staffed and run like hospitals.
Nearly two decades on, the he birthed has spread to 300听homes in 32 states. And when COVID-19 hit, its design features 鈥撎齝lusters of small buildings with private rooms and bathrooms 鈥撎齢elped to reduce infections, even in hard-hit cities like Boston and Detroit.
Dr. Thomas says these features provide a sense of belonging which most nursing homes lack. And they lead to better health outcomes. 鈥淚f you fix the broken heart it鈥檚 also good for the body, and it鈥檚 good for preventing infections,鈥� he says.听
Why We Wrote This
Safety, familiarity, community 鈥� for many of us, those are key to aging well. So why does so much elder care struggle to provide them? Advocates for nursing care reform hope changes can align our systems with our values.
For decades, reformers like Dr. Thomas have attempted to improve nursing homes. They have built alternative models 鈥撎齦ess institutional, smaller scale, better staffed 鈥撎齮hat appear to have done better during the pandemic.
But the greater prize is to help more elders age in their homes and communities. As COVID-19 roils the nursing home industry and the federal spending behind it, that goal may be in reach, reformers say.
鈥淢ost people would prefer to age in place, at home, if at all possible. The COVID epidemic might strengthen that, as people feel safer at home,鈥� says Anne Montgomery, co-director of elder care improvement at Altarum Institute, a nonprofit health consultancy.听听
The currently live at home. But seniors who require support services often end up in nursing homes because they rely on Medicaid to pay for long-term care. In recent years, alternatives to institutional care have expanded in many states, using Medicaid waivers. are spent on home- and community-based services today.
Now COVID-19 has shined a spotlight on the often-obscured lives of around 1.5 million Americans, with more than a third of deaths coming in nursing homes. The pandemic has upended the finances and reputations of home operators. It has disrupted the profitable flow of new residents discharged from hospitals. And it has forced the industry more generally to defend its poor record on infection control and other measures of quality and safety.
鈥淭he compact that people have made is to trade away certain freedoms and autonomy, and even respect and dignity, in return for a promise of security and safety. The COVID-19 pandemic has revealed that they [nursing homes] have not been able to fulfill that,鈥� says Kavan Peterson, a Seattle-based advocate and co-founder with听Dr. Thomas of .听
Nursing homes have pushed back against critics, pointing to the rapid spread of COVID-19 in urban areas where hard-hit homes were located. They also say public-health officials failed to provide needed equipment and guidance.听
Regardless, the challenges they face are significant.
鈥淣ursing homes have been set up to fail. They have extremely vulnerable populations,鈥� says Michael Barnett, assistant professor of health policy and management at the Harvard T.H. Chan School of Public Health. 鈥淭hey have workers who are underpaid and are largely immigrants and minorities who live in communities that are the worst affected.鈥�
New vision
Alternatives to traditional nursing homes vary from private assisted-living facilities to publicly-funded adult day centers to at-home visits by carers. PACE Centers, which already provide a wide array of services to the elderly and disabled in 31 states, are another path to expanding non-institutional care options.
A major impediment to independent senior living is cost. 鈥淣ot everyone is going to be able to afford to pay people for basic assistance to age in place and stay at home,鈥� says Ms. Montgomery of the Altarum Insititute.听
One modest solution is a new federal program, Community Care Corps. It recently awarded $2.4 million in grants to 23 nonprofits nationwide. The nonprofits will deploy volunteers to support family caregivers, seniors, and people with disabilities living independently. Altarum Institute is helping to evaluate its effectiveness. 鈥淭his is the age of volunteerism. We need more volunteers,鈥� says Ms. Montgomery, also a former policy adviser to the Senate Special Committee on Aging.
For his part, Dr. Thomas听wants to reimagine what that home looks like. Only is considered听age-friendly.
His vision is a home that is age-friendly, affordable, and woven into a community of all ages so that elders can sustain the connections that he sees as essential to longevity. He鈥檚 designed a small modular house he calls a Minka that can be added to existing properties or built in clusters to create new communities. The houses can be as small as 330 square feet, but are designed for the elderly and their needs. Affordable housing can also be set aside for young renters who can help seniors with daily tasks.听
In the Netherlands, city planners have added housing for students in buildings and courtyards with seniors, as well as making it easier for families to build add-ons for the elderly.
Dr. Thomas hopes such innovations can spur a generational shift in the U.S. away from nursing homes as inevitable. That shift is already underway, as home and community care grows more popular, and policymakers grapple with the costs of long-term care.听
What COVID-19 has done, he says, is to change the velocity: 鈥淚nstead of hoping to make something happen in 10 years we鈥檙e trying to make it happen in 10 months.鈥�
Dene Peterson, age 91, has spent the pandemic in her Appalachian co-housing community in Abingdon, Virginia, which has around 40 seniors. Her ElderSpirit Community formed a task force that set down some ground rules: social distancing, no house visits, masks required outside.
As a result, she says, 鈥淲e鈥檝e had no contamination here at all.鈥�
While Ms. Peterson misses aqua aerobics class at the local pool, she has learned to socialize with her neighbors via Zoom. The app was introduced by 鈥渢he young people鈥� 鈥� the 60-year-olds.
The former nun founded ElderSpirit in 2006 as a way to age in place together, and her mixed-income, multifaith community for ages 55 and up thrives on mutual support.
鈥淥ne of the best things is the fact that we manage ourselves,鈥� she says. 鈥淲e鈥檝e set up so that everybody has a chance to be useful.鈥�
Those with heightened medical needs can choose to move to assisted living, or arrange family caregivers or home health care in the comfort of their residence. Ms. Peterson plans on the latter. 鈥淚t鈥檚 one of the best ways of growing old that I know,鈥� she says. 鈥淵ou鈥檙e not lonely.鈥�
Doing the math
Even the most ardent critics of 鈥渂ig box鈥� homes accept the need for nursing homes in an aging society. Over the last decade, the number of 65-and-older Americans has grown by a third to 54 million, according to Census Bureau data. Home-based care is harder to regulate than nursing facilities and providers face similar challenges in recruiting low-paid carers.
In tough economic times, families also find it harder to care for their elders; caregivers already face the burden of lost earnings and reduced pensions. While Medicaid pays for traditional nursing care as a safety net, eligibility for home and community services varies by state.
Nursing home operators have long complained that reimbursements from Medicaid, averaging $200 a day, are too low to pay for the skilled nursing that residents need. Many homes use Medicare payments for post-acute short-term care to cross-subsidize their long-term beds.
This funding structure is one reason why few new nursing homes were being built, even before COVID-19, relative to the growing elderly population.
In 2003, Steve McAlilly built the first Green House nursing home in Tupelo, Mississippi. The organization he leads, Methodist Senior Services,听now has 19 homes statewide. All are built to Dr. Thomas鈥檚 design of small buildings with individual rooms, staffed by nurse aides who also cook and clean and are known as shahbaz, denoting a higher status than normal aides. (Dr. Thomas is no longer formally involved with the Green House Project, which is based in Linthicum, Maryland.)
Mr. McAlilly鈥檚 nonprofit also operates a traditional 60-bed nursing home. When COVID-19 began spreading in local nursing homes last month, he took all precautions to protect his residents. In the 60-bed home, 26 residents tested positive and 3 died, and 20 staff were also sickened, he says. By contrast, only one Green House had a small outbreak and nobody died.
鈥淭he same management, the same culture. The only difference is the design,鈥� he says.
Susan Ryan, senior director of the Green House Project, says only six residents in 245 homes surveyed nationwide have died of COVID-19. Facility layout was one factor. Another was staffing: The shahbaz model means residents don鈥檛 see a cadre of nurses, aides, and other workers.
鈥淭he direct care staff that is providing care to the elders are also doing the cooking and cleaning, and that means there are fewer people coming to do those activities,鈥� she says.
Key moment
Green Houses cost more to build and most are run by nonprofits, while the rest of the nursing-industry mostly follows a model that is more like a hospital than a home.
But a for-profit operator in Arkansas has begun to build more Green Houses, rather than expand other types of care homes, says Mr. McAlilly. The pandemic has made families rethink traditional nursing facilities. The developer听鈥渂elieves this is the future,鈥� he says.
Developers tend to build large nursing homes because scale is seen as necessary in an industry that relies on federal reimbursement that operators say hasn鈥檛 kept pace with costs.听Those costs have risen during the pandemic, while income from both long-term residents and short-term Medicare-funded stays has declined.
Still, some advocates say the root of the problem exposed by the pandemic is not money or policy but social attitudes. In an age-stratified society, caring for the old isn鈥檛 a common goal but a headache to solve, so vulnerable elders are sent to homes staffed by low-paid carers.
In polls, say that 鈥渁lmost everyone鈥� is likely to need long-term care, but only 25% believe this applies to them. Advocates say this mismatch helps explain why policymakers have been slow to reform the nursing-home sector.
鈥淲e have ageism and we have racism and that has had a tremendous impact on what we鈥檙e seeing. As a society we have accepted what some call warehousing. We have almost dehumanized elders, they have been the Other,鈥� says Ms. Ryan of the Green House Project.
She adds: 鈥淚f we don鈥檛 take this pandemic and learn from it, shame on us.鈥�
Staff writer Sarah Matusek contributed reporting.
Editor鈥檚 note: As a public service, we have removed our paywall for听all pandemic-related stories.
