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Is the Ice Bucket Challenge a new model for successful fundraising?

Money from the Ice Bucket Challenge sponsored a key discovery in the fight against ALS. 

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Greg Lehman/Walla Walla Union-Bulletin via AP
Amber Reyes has ice water poured on her during the Walla Walla Grand Ice Bucket Challenge in Washington, Sept. 2014. The $115 million the campaign raised funded research that identified the gene responsible for ALS.

When Pete Frates challenged his friends to dumpon their heads in a video, he hoped to turn a Facebook trend into a fundraiser for ALS, or Lou Gehrig鈥檚 disease. Two years, 17 million empty buckets, and $115 million later, researchers have identified a gene they believe to be responsible for the diagnosis Mr. Frates received.听

Project MinE, a global collaboration to sequence the genomes of at least 15,000 people diagnosed with ALS, has , researchers announced in a paper published in Nature Genetics on Monday. Because of the Ice Bucket Challenge, the ALS Association was able to , it said in a statement. 听

The Ice Bucket Challenge's success in raising millions of dollars, and its contribution to the pivotal discovery, not only shows how a charity can hit the jackpot through a social media campaign, but it also shows how even those who don鈥檛 contribute can provide energy to it, countering criticism the challenge was just Internet 鈥渟lacktivism鈥 that required almost no effort.听

鈥淭here鈥檚 new energy and excitement in the ALS research phase that hasn鈥檛 been there before,鈥 says Brian Frederick, the ALS Association鈥檚 executive vice president of communications and development, in a phone interview with 海角大神 Tuesday. 鈥淭he needle is moving. Now, thanks to the Ice Bucket Challenge, it鈥檚 moving much quicker.鈥澨

It all started with Frates. He challenged friends, who challenged more friends, who, eventually, challenged millions of more friends. The nomination process was simple: dump on your head within 24 hours, or donate $100 to research (many did both). Participants posted a video on Facebook, Instagram, or Twitter. Even celebrities like Stephen Curry, Bill Gates, and former President George W. Bush got wet.听

The ALS Association $77 million of the $115 million it brought in to research, including Project MinE. The international effort is the largest familial study of the disease, and was led by the University of Massachusetts Medical School in Worcester and the University Medical Center Utrecht听in the Netherlands.

In an interview with the Monitor, Dr. Frederick and Calaneet Balas, the ALS Association鈥檚 executive vice president of strategy, says the Ice Bucket Challenge allowed the nonprofit to contribute to research efforts they were previously approached by, but weren鈥檛 in a position to contribute to. Moreover, they said, the phenomenon energized research efforts about ALS.听

The team behind , led by John Hopkins professor Philip Wong, also attested to this last year. Dr. Wong's team had been studying ALS for a decade. But the funds the challenge brought to the field propelled them to pursue riskier yet potentially more rewarding experiments.

The challenge wasn't without its critics, however.听Participants were criticized for not emphasizing that the challenge was about ALS, for example. Jacob Davidson, a news editor at Time Magazine whose father died of the disease, described feeling uneasy .

鈥淓veryone you鈥檝e ever seen dump water on themselves, per the rules, is not asked to donate. They may choose to, but the viral nature of this fad appears centered around an aversion to giving money,鈥 wrote Mr. Davidson in August 2014. 鈥淭he Challenge even seems to be suggesting that being cold, wet, and uncomfortable is preferable to fighting ALS.鈥

Davidson was generally supportive of the challenge, because it spread awareness about the disease, but said future campaign should try emphasize donating.

鈥淚n an age where hashtag activism and information-free awareness campaigns are becoming more and more common, we should be very conscious of how to make viral trends as useful as possible,鈥 he wrote. 听听

Dan Pallota, a nonprofit expert known for his involvement in multi-day charity events for breast cancer, AIDS, and suicide prevention awareness, was critical of how Americans have since numbers were first tracked in the 1970s. Charitable giving has remained at 2 percent of the country鈥檚 GDP, he wrote in the Harvard Business Review. (Inflation-adjusted wages for most workers have听听since the 70s, too.)

Millennials give in even smaller amounts 鈥 $5 or $10 鈥 to , rather than a larger sum every year to one organization, according to Stacy Palmer, editor of The Chronicle of Philanthropy.听

"They鈥檙e really feeling like, in this moment, this campaign asked for my support... It doesn鈥檛 matter to me if it鈥檚 a nonprofit, a political organization, a community group," Ms. Palmer told PBS Newshour. "I want to give $10, and I also want to feel like my $10 was important, it was noticed by them, and it made a difference."

But she and Amy Sample Ward, chief executive of 听the Nonprofit Technology Network, said the Ice Bucket Challenge showed nonprofits can take advantage of these young donors' tendencies. The important thing is finding something that鈥檚 fun and sharable.

"It鈥檚 about the people participating," said Ms. Ward. "It鈥檚 not about the organization."

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